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CJD

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CJD (495)

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To ask the Minister for the Cabinet Office, what discussions he has had with the Secretary of State for Health and Social Care on compensation for people impacted by infected blood and also by variant Creutzfeldt-Jakob disease.

Asked by
Graeme Downie (Labour)
Answering body
Cabinet Office
Type
Written questions
Status
Answered
Date
8 July 2025
Reference
63803
House
House of Commons

My noble friend the Parliamentary Under-Secretary of State for Patient Safety, Women's Health and Mental Health (Baroness Merron) has made the following Written Statement

I am pleased to inform the House that the first patients in England have now received life-saving plasma derived medicines made from UK donor plasma for the...

Member
Ashley Dalton (Labour)
Department
Department of Health and Social Care
Type
Written statements
Date
6 March 2025
Reference
HCWS506
House
House of Commons

I am pleased to inform the House that the first patients in England have now received life-saving plasma derived medicines made from UK donor plasma for the first time in over 25 years. This will boost self-sufficiency and reduce reliance on imports from abroad.

Blood plasma medicines are critical for approximately...

Member
Baroness Merron (Labour)
Department
Department of Health and Social Care
Type
Written statements
Date
6 March 2025
Reference
HLWS500
House
House of Lords

To ask the Secretary of State for Health and Social Care, what recent assessment she has made of the reliability of diagnostic testing of blood samples for vCJD.

Asked by
Ben Lake (Plaid Cymru)
Answering body
Department of Health and Social Care
Type
Written questions
Status
Answered
Date
2 May 2024
Reference
23782
House
House of Commons
Deposited by
Department of Health and Social Care
Type
Deposited papers
Date
2 October 2023
Reference
DEP2023-0802
House
House of Lords
Deposited by
Whips Office (Lords)
Type
Deposited papers
Date
19 July 2023
Reference
DEP2023-0603
House
House of Lords

My Hon Friend the Minister of State for Care (Helen Whately) has made the following statement:

I would like to inform the House that the Government has decided to allow the use of UK sourced plasma for the manufacture of immunoglobulins.

In the wake of the Bovine Spongiform Encephalopathy (BSE) epidemic in...

Member
Lord Bethell (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
25 February 2021
Reference
HLWS794
House
House of Lords

I would like to inform the House that the Government has decided to allow the use of UK sourced plasma for the manufacture of immunoglobulins.

In the wake of the Bovine Spongiform Encephalopathy (BSE) epidemic in the 1990s, a number of extra precautionary safety measures were introduced to protect patients from...

Member
Helen Whately (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
25 February 2021
Reference
HCWS797
House
House of Commons

I would like to inform the House that the Government, along with the Scottish Government and the Welsh Government, will be updating some specific variant Creutzfeldt-Jakob disease (vCJD) precautionary measures in England, Scotland and Wales.

In 2004, the Government was advised to establish precautionary vCJD risk reduction measures in the UK,...

Member
Caroline Dinenage (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
9 September 2019
Reference
HCWS1821
House
House of Commons

My Hon. Friend the Minister of State for Care (Caroline Dinenage) has made the following written statement:

I would like to inform the House that the Government, along with the Scottish Government and the Welsh Government, will be updating some specific variant Creutzfeldt-Jakob disease (vCJD) precautionary measures in England, Scotland and...

Member
Baroness Blackwood of North Oxford (Conservative)
Department
Department of Health and Social Care
Type
Written statements
Date
9 September 2019
Reference
HLWS1784
House
House of Lords

I am delighted to see the Minister in her place, and I am sure that she is delighted to be here—or at least she is trying to smile under the circumstances. She has probably been made aware of my long-term interest in, and deep concern about, this subject. I am...

Member
Paul Beresford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 cc1492-5
House
House of Commons

I congratulate the hon. Gentleman on making such a compelling case for those with CJD. In 2001 the Government set some money aside for a compensation scheme for UK victims of variant CJD. A trust fund was set up in April 2001 and compensation payments of £25,000 were made to...

Member
Jim Shannon (Democratic Unionist Party)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 c1494
House
House of Commons

The hon. Gentleman makes a good point, but what I would really like to do is get the Government to take some action that is sitting, waiting, readily available to prevent it; otherwise, in time to come I believe we are going to have a chance of a considerable flood...

Member
Paul Beresford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 c1494
House
House of Commons

I congratulate my hon. Friend the Member for Mole Valley (Sir Paul Beresford) on securing this important debate on variant CJD and surgery. It is clearly an area on which he has a great deal of knowledge. I recognise that prion disease is the causative agent of transmissible spongiform encephalopathies...

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 cc1494-6
House
House of Commons

I am a little worried that the Minister appears to accept that surgical procedures are as good as they can be, given that the Department is inviting research to find a RelyOn equivalent in order to improve the situation. The Department must therefore see a flaw in what we have...

Member
Paul Beresford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 c1496
House
House of Commons

My hon. Friend anticipates my next words as only an experienced Member of Parliament can do. I think it is right to say that there has so far been no evidence of any secondary, person-to-person, vCJD transmissions via surgery or dentistry. Nevertheless, we are maintaining and updating our precautionary approach....

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 cc1496-7
House
House of Commons

I accept everything that my hon. Friend says. However, a test solution is on the market and waiting to come through. The Prion Unit test has reached the point at which it just needs a final run to ensure that it does come through. I hope that I can count...

Member
Paul Beresford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 c1497
House
House of Commons

That is one reason why the Department has continued in difficult financial times to ring-fence £5.5 million a year for CJD-related research.

We are keen to see safe, evidence-based, cost-effective measures to reduce the risk of vCJD. At the moment, however, there is no validated diagnostic blood test that can...

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 cc1497-8
House
House of Commons

In my intervention on the hon. Member for Mole Valley (Sir Paul Beresford), I asked whether compensation should be increased because of the number of years since the agreement was first made. With great respect and humbleness, I ask the Minister whether the Government would consider that.

Member
Jim Shannon (Democratic Unionist Party)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 c1498
House
House of Commons

The scheme is considered to be particularly effective. I shall look at it in the light of the hon. Gentleman’s comments, but it seems to be meeting current concerns. It is also important not to overstate the risks of CJD compared with other disease threats we face. The incidence is...

Member
Baroness Blackwood of North Oxford (Conservative)
Type
Proceeding contributions
Date
29 November 2016
Reference
617 cc1498-1500
House
House of Commons