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Proceeding contribution from Baroness Kidron (Crossbench) in the House of Lords on Tuesday, 10 December 2024. It occurred during Committee proceeding and Debate on bill on Data (Use and Access) Bill [HL].


Data (Use and Access) Bill [HL]

My Lords, I will speak to Amendments 59, 62, 63 and 65 in the name of my noble friend Lord Colville, and Amendment 64 in the name of the noble Lord, Lord Clement-Jones, to which I added my name. I am also very much in sympathy with the other amendments in this group more broadly.

My noble friend Lord Colville set out how he is seeking to understand what the Government intend by “scientific research” and to make sure that the Bill does not offer a loophole so big that any commercial company can avoid data protections of UK citizens in the name of science.

At Second Reading, I read out a dictionary definition of science:

“The systematic study of the structure and behaviour of the physical and natural world through observation, experimentation, and the testing of theories against the evidence obtained”—

i.e. everything. I also ask the Minister if the following scenarios could reasonably be considered scientific. Is updating or improving a new tracking app for fitness, or a bot for an airline, scientific? Is the behavioural science of testing children’s response to persuasive design strategies in order to extend the stickiness of commercial products scientific? These are practical scenarios, and I would be grateful for an answer in order to understand what is in and out of the scope of the Bill.

When I raised Clause 67 at a briefing meeting, it was said that it was, as my noble friend Lord Colville suggested, just housekeeping. The law firm Taylor Wessing suggests that what can

“‘reasonably be described as scientific’ is arguably very wide and fairly vague, so it will be interesting to see how this is interpreted, but the assumption is that it is intended to be a very broad definition”.

Each of the 14 law firm blogs and briefings that I read over the weekend described it variously as loosening, expanding or broadening. Not one suggested that it was a tightening and not one said that it was a no-change change. As we have heard, the European Data Protection Supervisor published an opinion stating that

“scientific research is understood to apply where … the research is carried out with the aim of growing society’s collective knowledge and wellbeing, as opposed to serving primarily one or several private interests”.

When the Minister responds, perhaps she could say whether the particular scenarios I have set out fall within the definition of scientific and why the Government have failed to reflect the critical clarification of the European Data Protection Supervisor in transferring the recital into the Bill.

I turn briefly to Amendment 64, which would limit the use of children’s personal data for the purposes of research and education by making it subject to a public interest requirement and opt-in from the child or a parent. I will speak in our debate on a later grouping to amendments that would enshrine children’s

right to higher protection and propose a comprehensive code of practice on the use of children’s data in education, which is an issue of increasing scandal and concern. For now, it would be good to understand whether the Government agree that education is an area of research where a public interest requirement is necessary and appropriate and that children’s data should always be used to support their right to learn, rather than to commoditise them.

During debate on the DPDI Bill, a code of practice on children’s data and scientific research was proposed; the Minister added her name to it. It is by accident rather than by design that I have failed to lay it here, but I will listen carefully to the Minister’s reply to see whether children need additional protections from scientific research as the Government now define it.


Secondary information

Type
Proceeding contribution
Reference
841 cc401-1719GC 
Session
2024-26
Chamber / Committee
House of Lords Grand Committee
Subjects
Children Data protection Copyright Data processing European Convention on Human Rights Exemptions Ethics Internet NHS Ministerial powers Public interest Privacy Medical records Medicine Research Safety Science Artificial intelligence Information sharing
Legislation
Data (Use and Access) Bill (HL) 2024-26
Link
View this Proceeding contribution on hansard.parliament.uk